1 When Our Personal Selves Influence Our Professional Work
An Introduction to Emotions and Countertransference in Palliative and End-of-Life Care
Renee S. Katz
DOI: 10.4324/9781315716022-1
As helping professionals working in palliative and end-of-life care, we are deeply affected by loss, heartbreak, and tribulation in our personal as well as professional lives. In fact, many of us have chosen to work in palliative and end-of-life care as a result of our own experiences with dying, trauma, and loss. Whether we are physicians, chaplains, nurses, social workers, psychologists, physical therapists, or occupational therapists, we have certain values and ethics, sociocultural influences, personal life histories and memories, and preconceived notions and assumptions that we inescapably bring to our work (Katz & Genevay, 2002).
The âCâ Word
When we invited our contributing authors to write about their experiences and the subtle ways in which they can get âhookedâ when providing palliative and end-of-life care, we discovered an abundance of preconceived notions and biases about the âCâ word (countertransference). The authors were concerned that countertransference implied a distant, impersonal, even sterile work style. They pictured caricatures of stereotypical Freudian psychoanalysts using academic and theoretical intellectualization to avoid being truly present, truly genuine, or truly human. We had to challenge the authors to look beyond the stereotype of the distant, tabula rasa analyst and understand that the âCâ word is every bit as relevant to health-care professionals working with patients and families living with serious illness or the threat of death as it is to psychoanalytic psychotherapists. We had to make the case that countertransference is a concept that actually beckons helpers to look at their humanness in the face of serious illness, dying, death, and bereavement rather than avoiding it.
It is true that the concept of countertransference was initially described by Freud as an unconscious process involving the arousal of the analystâs unresolved conflicts and problems (Freud, 1910). In Freudâs classical definition, countertransference was regarded as an obstacle to treatment, a blind spot that the analyst had to overcome to work effectively (Freud, 1912). Over the years, however, the definition of countertransference extended to include the totality of feelings experienced by the clinician toward the patientâwhether conscious or unconscious or whether prompted by the clientâs dynamics or by issues or events in the clinicianâs own life (Beitman, 1983; Kernberg, 1965; Langs, 1983; Shubs, 2008). Countertransference is now regarded as a natural, appropriate, and inevitable emotional response (Gabbard, 1999; Maroda, 2004; Racker, 1968), and âa crucial source of information about the patientâ (Gabbard, 1995, p. 475). Working with countertransference is regarded as a positive and important therapeutic tool, âan indispensable instrumentâ (Gill, 1994, p. 102) in our work. It is the basis for empathy, compassion, and a deeper understanding of both the patientâs and the clinicianâs own processes (Beitman, 1983; Heimann, 1950; Little, 1951; Shubs, 2008; Wishnie, 2005).
Sandler, Dare, and Holder (1973), Dunkel and Hatfield (1986), and others have delineated the necessity of examining countertransference dynamics in interactions beyond strict psychoanalytic or psychotherapeutic treatment. We, too, believe that countertransference is part and parcel of all helping relationships, as we shall see in the writings that follow.
Countertransference in the Context of Palliative and End-of-Life Care
In palliative and end-of-life care, professionals of all disciplines and levels of experience are subject to powerful reactions to their work. These responses are far more diverse than simply âcompassion fatigueâ or âvicarious traumatization.â Some of these responses originate in the helper, some âbelongâ to the patient (but are knowingly or unknowingly incorporated by the empathic helping professional), and some belong to that âalchemy,â that âspaceâ that takes its own place in the poignant relationship between helper and patient. The context of critical illness, death, and dying brings these responses into an altogether unique realm of thought and practice. Countertransference responses can be complex and often enormously subtle in their manifestations. They inevitably affect every interaction, every theoretical discussion, every diagnostic workup, and every treatment plan.
Whether we are psychologists in private offices struggling to sustain an empathic environment for those who suffer profound loss and deep trauma, whether we are physicians wrestling with those words that will dim the hope in our patientâs eyes, whether we are clergy or hospice social workers painstakingly striving to help patients make meaning at the end of life, whether we are administrators and teachers of clinical and residency programs working hard to prepare and support those in the trenchesâall of us require an understanding of this subtle yet complex process that impacts our work every day.
For example, do you recognize any of the following scenarios?
The Midwest doctor who has sworn an oath to do everything possible to sustain lifeâhow does he âhelpâ an elderly Chinese woman whose family culture does not permit her to âknowâ of her imminent death and the lack of further curative treatments?
The conservative Catholic social worker whose father committed suicide when she was 12âhow does she âhelpâ a family in its decision to stop all antibiotics and tube feedings for their 45-year-old father who is now brain dead?
The young psychiatrist who simply prescribes psychotropic medication for the elderly Jewish patient who canât stop scrubbing his armsâhow does he âhelpâ when he has missed the chart note explaining that this man survived the Holocaust by burying dead bodies in Auschwitz?
We believe that understanding countertransference processes is invaluable in all therapeutic relationships, and working with patients and families living with serious illness or facing the end of life is no exception. Thus, in the chapters that follow, we use the term countertransference as an âabbreviationâ for the totality of our responses to our workâemotional, cognitive, and behavioralâwhether prompted by our patients, by the dynamics incumbent to our helping relationships, or by our own inevitable life experiences.
The Dovetailing of the Personal and the Professional
Our real, often intense reactions to work in palliative and end-of-life care tell us that there is a personal-professional interface between our own life developmental tasks and our professional interactions (Genevay & Katz, 1990). Yet, how many of us take the time to reflect on the convergence of our personal lives and those of the patients and families with whom we work? How many of us have been trained to stop, breathe, and reflect on the dynamics that may be affecting us in this profoundly privileged work? Can we be sure that we are making the ârightâ decisions on behalf of our patients if we have not examined the multiple facets that impact our thinking, feeling, and behavior in this very personal work?
Personal work? No, this is professional work, one might argue. In fact, in the pages that follow, we propose that our professional work with seriously ill, dying, and bereaved patients is extremely personal in nature, that we are profoundly influenced by our patients and their families as much as they are impacted and influenced by us, and that our emotional responses do impact the clinical momentâwhether we want them to or not, whether we are aware or not, whether we can admit it or not.
And, therein lies the rub. With medical training that emphasizes physical symptom relief, treatment, and cure, health-care providers have borne the expectation and the responsibility of effecting therapeutic outcomes based on their evaluations of the patient, on the technical science, and on the âfactsâ as they know them. Yet, providers are often taken aback: the facts donât add up. How can that be?
Attending to the whole of the patient-clinician experience may provide a vehicle for understanding this phenomenon. With the advent of quantum physics, the definition of an entity, of an experience, and even of a unit has changed. Scientific explorations of objectivity and subjectivity have revealed fascinating new discoveries about what has long been understood as the âgestaltââthe whole that is greater than the sum of its parts. These findings demand that we face the truth, that we, as âexperts,â cannot responsibly divorce ourselves from this wholeânor from the alchemical reaction that occurs when two individuals engage with each other at what is, perhaps, the most vulnerable time in a human beingâs existence, living with serious illness and the threat of death. Patients, their subjective experience of their own illnesses, their families, and their worldsâeverything, in factâis irrevocably changed with our entry into the helping relationship. Taking responsibility to examine and explore how we influence the individual and the individualâs processes and outcomes, how the patient influences us, as well as taking stock of the ways in which these impact our professional actions, is long overdue in the literature on palliative and end-of-life care.
Thus, in this volume, we scrutinize ourselves in our part of the dyad. We examine what we bring to the therapeutic relationship and, conversely, the ways in which it impacts us. The authors have taken great risks in inviting us into their therapeutic realms. They disclose uncomfortable, even embarrassing, moments, actions, and outcomes of their work; they reveal interactions diagnoses, treatment recommendations, and the like, which upon their later reflection were not as objective and helpful as they would have liked to have believed. And, paradoxically, the authors reveal that some of these same âfailuresâ were, in fact, exactly what the patient needed!
In so admitting our professional foibles (influenced by our personal life histories, experiences, and cultural overlays), we hope to encourage other professionals working in palliative and end-of-life care to confront and examine their own denial, fear, helplessness, and anger related to death and loss as well as their need to control, cure, save, and âdo good.â In the pages that follow, we examine dynamics such as how practitioners both over-help and under-help patients and families; how personal feelings, cultural and religious biases, and prior life experiences can contribute to inappropriate diagnosis, referrals, and interventions; and why treatment is prolonged with some patients and terminated prematurely with others. We invite helping professionals to examine their inherent assumptions about a âgood death,â about resilience and hope when, in fact, the meanings attributed to these words become so relative and so differently understood by the patients, families, and communities with whom we work.
The Courage to Be Honest
It is our belief that if we have the courage to identify and confront the totality of our responses in palliative and end-of-life care, we can use them to inform and enrich our work. If we do not, we may find ourselves entangled in potentially damaging situations. It is our hope that examination of these complex personal and professional interactions will be requisite training for each and every person working with seriously ill, dying, or bereaved patients. And for those of us already deeply immersed in this work, we trust that this volume will serve as a guide to unraveling and understanding our own responses to this profou...