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Ill Feelings
About This Book
An intrepid, galvanizing meditation on illness, disability, feminism, and what it means to be alive.
In 1995 Alice’s mother collapsed with pneumonia. She never fully recovered and was eventually diagnosed with ME, or Chronic Fatigue Syndrome. Then Alice got ill. Their symptoms mirrored their mother’s and appeared to have no physical cause; they received the same diagnosis a few years later.  Ill Feelings  blends memoir, medical history, biography and literary nonfiction to uncover both of their case histories, and branches out into the records of ill health that women have written about in diaries and letters. Their cast of characters includes Virginia Woolf and Alice James, the poets Elizabeth Barrett Browning and Emily Dickinson, John Ruskin’s lost love Rose la Touche, the artist Louise Bourgeois and the nurse Florence Nightingale. Suffused with a generative, transcendent rage, Alice Hattrick’s genre-bending debut is a moving and defiant exploration of life with a medically unexplained illness.
Frequently asked questions
Information
Sources
3 | āillness is the great confessionalā; āthings said, truths blurted out, which the cautious respectability of health concealsā; ālet a sufferer describe a pain in his head to a doctor and language at once runs dryā: Virginia Woolf, āOn Being Illā, Selected Essays ed. David Bradshaw (Oxford: Oxford University Press, 2008), 104, 102. |
3 | āDid anyone ever suffer as I did?ā: Virginia Woolf, letter to Vanessa Bell, 18 June 1919, The Letters of Virginia Woolf, 1912ā1922 ed. Nigel Nicolson (Harcourt Trade Publishers, 1975), 369. |
3 | āthe pain not be wastedā: Audre Lorde, The Cancer Journals (London: Penguin, 2020), 9. |
7ā8 | āa case of genuine hysteria for which no cause as yet can be discoveredā: Mary James quoted in Ruth Bernard Yeazell, The Death and Letters of Alice James: Selected Correspondence (Berkeley: University of California Press, 1981), 12. |
8 | āmy nerves are his nerves and my stomach his stomachā: Alice James (25 March 1890), The Diary of Alice James ed. Leon Edel (Boston: Northeastern University Press, 1999), 104. |
8 | ātaking up of household duties that her mother laid downā: Catherine Walsh [Aunt Kate] quoted in Jean Strouse, Alice James: A Biography (New York City: New York Review Books, 2011), 202. |
9 | āā¦ experience the pain, without distractionā: Alice James (18 July 1890), The Diary of Alice James, ed. Leon Edel (New York City: Dodd, Mead & Company, 1964), 129. Also: āHow well one has to be, to be ill!ā |
11 | ātender and affectionate to Virginia Woolf in her illness ā¦ā: Hermione Lee, āIntroduction to On Being Illā, āOn Being Illā (Ashfield: Paris Press, 2002), xv. |
11 | In 2009, six years after the SARS virus infected around 8,000 people ā¦: Marco Ho-Bun Lam et al., āMental Morbidities and Chronic Fatigue in Severe Acute Respiratory Syndrome Survivors: Long-term Follow-up.ā Archives of Internal Medicine, (December 2009) 169(22): 2142ā2147. |
11 | Funding had been syphoned off to other diseases in the US, and patients felt abandoned: āThe current developments are part of a chain of events that began in 1998, when William Reeves, director of the CDCās viral exanthems and herpesvirus branch, reported that funding earmarked by Congress for studies on CFS had been diverted to unrelated CDC projects. A subsequent congressional inquiry revealed that a total of $12.9 millionāas much as half of the funds appropriated for the CFSāhad been redirected or improperly accounted for. Reeves has also filed a complaint with the US Office of Special Counsel alleging that his supervisor, Brian Mahy, reprimanded him, reduced his staff and downgraded his performance appraisals after Reeves reported the irregularities.ā Alan Dove, āGAO reports on CFS funding controversyā, Nature Medicine (August 2000) 6: 846. |
12 | One study in Japan suggested people with a diagnosis of ME/CFS had smaller hearts ā¦: [The papers I came across at this time were written by Kunihisa Miwa and include this one] āCardiac dysfunction and orthostatic intolerance in patients with myalgic encephalomyelitis and a small left ventricleā, Heart Vessels (July 2015) 30(4): 484ā489. [Miwa is one of the authors of the 2011 International Consensus Criteria for myalgic encephalomyelitis.] |
16 | āThe subject of pain is the business I am in ā¦ā: Louise Bourgeois quoted in Rainer Crone, The Secret of the Cells (Munich: Prestel, 1998), 81. |
18 | During a symposium at the Royal Society of Medicine in 1978 ā¦: M.J. Dillon, āāEpidemic neuromyastheniaā at the Hospital for Sick Children, Great Ormond Street, Londonā in āāEpidemic neuromyastheniaā 1934ā1977: current approachesā, A symposium held by the courtesy of the Council of the Royal Society of Medicine at 1 Wimpole Street, London, W.1, on 7 April 1978ā, ed W. H. Lyle And R. N. Chamberlain, Postgraduate Medical Journal (November 1978), 54. |
23 | ānever to rest, interminably, from sea... |
Table of contents
- Cover
- Praise for Ill Feelings
- Title Page
- Copyright
- Contents
- Epigraph
- Dredge
- Basically furious
- Unknown aetiology
- Longing
- Child-life
- Such a crisis
- Storm coming
- Never-ending
- Every other day
- No one likes blue
- Blamed
- The worst thing
- Fresh and gorgeous
- Danger signals
- Examine me
- Intolerable bursting
- Off label
- Three good teeth
- Back to zero
- Wandering nerve
- Case definition
- Thumb-screw
- The same thing
- Too toxic
- In my body
- All the eating
- Housekeeping
- Little paws
- Not for everyone
- More harm than good
- The more you uncover
- Drained
- Combing through
- No
- Unrecovery
- Sources
- About the Author
- Also Available from the Feminist Press
- About the Feminist Press