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Bioethics in Action
About This Book
Speaking from and to the growing movement among academics to become involved with 'socially-engaged' work, this volume presents first-person case studies of attempts to fix serious ethical problems in medical practice and research. It highlights the critical difference between the pundit approach to bioethics and the interventional approach - the talkers and the doers - and points to how abused and damaged the doers often end up. Chapters cover a diverse set of topics, including the troubling influence of for-profit businesses on public health policy, the politics of exposing histories of unjust medical research, the challenges of patient rights' work in sexuality and reproduction, collaborations between NGOs and academics, methods for changing entrenched yet harmful medical practices, engaging public policy through educating governmental leaders, and whistleblowing. The trending interest in the interplay of academia and advocacy and the growing importance of 'socially-engaged' work by academics make this a timely and much-needed resource.
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Table of contents
- Cover
- Half-title
- Series information
- Title page
- Copyright information
- Table of contents
- List of Contributors
- Acknowledgments
- 1 More than Words
- 2 ‘‘Where There’s Smoke, There’s Pfizer’’
- 3 ‘‘So What?’’: Historical Contingency, Activism, and Reflections on the Studies in Tuskegee and Guatemala
- 4 Twenty Years of Working toward Intersex Rights
- 5 Working with Public Citizen: An Academic-NGO Collaboration
- 6 Reproductive Technology’s Legacy of Omission
- 7 Establishing Pediatric Palliative Care: Overcoming Barriers
- 8 History and Philosophy of Science Engaging the Public
- 9 The Flint Water Crisis
- Index