Consumer Genetic Technologies
Ethical and Legal Considerations
- English
- PDF
- Available on iOS & Android
Consumer Genetic Technologies
Ethical and Legal Considerations
About This Book
For the average person, genetic testing has two very different faces. The rise of genetic testing is often promoted as the democratization of genetics by enabling individuals to gain insights into their unique makeup. At the same time, many have raised concerns that genetic testing and sequencing reveal intensely personal and private information. As these technologies become increasingly available as consumer products, the ethical, legal, and regulatory challenges presented by genomics are ever looming. Assembling multidisciplinary experts, this volume evaluates the different models used to deliver consumer genetics and considers a number of key questions: How should we mediate privacy and other ethical concerns around genetic databases? Does aggregating data from genetic testing turn people into products by commercializing their data? How might this data reduce or exacerbate existing healthcare disparities? Contributing authors also provide guidance on protecting consumer privacy and safety while promoting innovation.
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Table of contents
- Cover
- Half-title page
- Title page
- Copyright page
- Contents
- List of Contributors
- Acknowledgments
- Introduction
- I Consumer Genetic Technologies: Rights, Liabilities, and Other Obligations
- Part II Privacy in the Age of Consumer Genetics
- Part III Tinkering with Ourselves: The Law and Ethics of DIY Genomics
- Part IV Consumer Genetics and Identity
- Part V The Impact of Genetic Information