There are currently over 1.3 billion people globally who experience exclusion and inequality rooted in persistent and deep ableism. Quality research with and about disabled people is vital to changing this situation. Such research presents ethical challenges and complexities which have not been given the attention they deserve if we are to advance disability rights as promised by the UNCRPD and other equality and human rights commitments.

Considering important aspects of general ethical principles, including respect, consent, privacy and confidentiality, this volume of Advances in Research Ethics and Integrity fills that gap. It does so while also recognising the broad scope, diversity and significant size of the disabled population.

Experienced researchers from the field examine processes of disablement and the specificities which arise when researching the lives of people with physical, mental, intellectual or sensory impairments. Authors also incorporate social factors such as gender, ethnicity and age and how they interact with disability. Building from the context set by the UNCRPD and other ethical guidance, chapters explore topics such as ensuring quality in data, the importance of defining terms, ethical inclusion, use and misuse of the term vulnerability, the intersection of race and ethnicity, the role of ethics committees and other approval processes and maximising research impact.

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Yes, you can access Advances in Disability Research Ethics by Anne Good, Iris Elliott, Sharon Mallon, Anne Good,Iris Elliott,Sharon Mallon in PDF and/or ePUB format, as well as other popular books in Social Sciences & Social Science Research & Methodology. We have over one million books available in our catalogue for you to explore.

Information

Publisher

Emerald Publishing Limited

Year

2024

ISBN

9781787693135

Topic

Social Sciences

Subtopic

Social Science Research & Methodology

Index

Social Sciences

Cover
Title
Introduction
Chapter 1. Systemic Change in Research Ethics for the Uncrpd Knowledge Base: Mapping a Way Forward
Chapter 2. Ethical and Legal Issues in the Collection, Use, and Dissemination of Data on Disability
Chapter 3. The Importance of Definition of Terms in Disability Research
Chapter 4. Ethical Inclusion and Participation of People with Disability in Research: Problematising Vulnerability
Chapter 5. On Surviving Race with Allies: Disability, Race/Ethnicity, and Human Rights
Chapter 6. The Role of an Ethics Committee in Co-Produced Research: The Experience of the Disability Research on Independent Living and Learning (Drill) Project
Chapter 7. Communicating Evidence for Impact
Chapter 8. Conclusion: Directions for Future Research
Index